N.J. family gets $10,000 gift to move to Colorado for medical mar1juana

Miracles Boys33 · Jan 5, 2014

The Scotch Plains family whose fight to get medical mar1juana for their toddler has drawn national attention, received a $10,000 donation on Christmas to help them relocate to Colorado.

The donation to the Wilson Family of $5,000 each came from MagicalButter.com, a Washington state company that manufactures cannabis-infused edible products and the machine that extracts the plant's active ingredients, and Lisa and Drew Braun, friends of the company's CEO, Garyn Angel said.

Angel and his friends made a YouTube video informing them about the donation, and enlisted a Wilson family friend to pay them a visit Christmas Day and videotape their reaction. Both are seen crying and laughing.

"How's that for a little stress relief?" Brian Wilson asked his wife, Meghan.

Brian Wilson said they are overwhelmed by the generous gift that will enable them and their two daughters in early 2014 to move to Colorado, where an edible form of mar1juana is manufactured and has helped relieve the seizures in children with serious epilepsy disorders.

Their youngest daughter Vivian, 2 years old, has from Dravet syndrome, a potentially deadly form of epilepsy that traditional medicine has been able to control. They also have a daughter, Adele, who is 4.

"The contribution will relieve a lot of the financial stress this move was going to place on us," said Brian Wilson, who lamented that the Christie administration's rigid medical mar1juana program is unable to help them yet.

"Christie's policies are forcing us to flee the state and become medical refugees at a great personal expense. Through their great generosity, MagicalButter and the Braun family are relieving us of most of the financial hardship that comes with a forced move."

After Wilson confronted Gov. Chris Christie at a campaign stop pleading to not let his daughter die, the governor signed a law that allowed growers to manufacture edible products for children and expand the number of strains that may be grown. But growers and the Christie administration are months away at least from producing and testing an edible product to replicate the kinds of successes seen out west.

A new bill is pending to require New Jersey recognize other state medical mar1juana programs, in order to help families use products here grown elsewhere, but Christie has said he will not consider future expansions of the law, fearing it is just a step toward legalization.

"In true New Jersey fashion, Christie has made Vivian Wilson 'born to run,' " said Wilson, referencing the signature song by the governor's favorite performer, Bruce Springsteen.

Angel said he created the company last year and has tens of thousands of customers, who are mostly middle-aged to elderly and have from Crohn's disease. A machine he invented breaks down the plant and extracts an active ingredient, cannabidiol, that is showing success in reducing the severity and frequency of seizures.

Angel said he learned about the family's plight on the web, donated his extraction machine, and decided to visit about three weeks ago. He doesn't have any child customers yet.

"They are trying to do everything on their own, but we wanted to help," said Angel, whose friends from Tampa, Lisa and Drew Braun, contributed to the Wilsons despite having never met them.

"The world is pulling for you guys," Angel tells the Wilsons on the video.
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http://www.nj.com/politics/index.ss...o_move_to_colorado_for_meidcal_marijuana.html

Dairy Ashford · Jan 5, 2014

I don't see cannabis here:

The following medications have been shown to benefit patients with Dravet syndrome:

divalproex sodium and derivatives (Depakote, Depakene, Epilim, Epival, Micropakine)

topiramate (Topamax)

stiripentol (Diacomit)

clobazam (Frisium, Onfi, Urbanyl)

clonazepam (Klonopin, Rivotril)

levetiracetam (Keppra)

bromides

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tallanvor · Jan 5, 2014

pouhe said: ↑

I don't see cannabis here:
Click to expand...

cannabis is often used just to give a patient an appetite. not necessarily to cure the illness.

BigBenito · Jan 5, 2014

http://www.cnn.com/2013/08/07/health/charlotte-child-medical-mar1juana/

Charlotte's Web

Paige soon heard about the Stanley brothers, one of the state's largest mar1juana growers and dispensary owners. These six brothers were crossbreeding a strain of mar1juana also high in CBD and low in THC, but they didn't know what to do with it. No one wanted it; they couldn't sell it.
Still, even they had reservations when they heard about Charlotte's age. But once they met her, they were on board.

"The biggest misconception about treating a child like little Charlotte is most people think that we're getting her high, most people think she's getting stoned," Josh Stanley said, stressing his plant's low THC levels. "Charlotte is the most precious little girl in the world to me. I will do anything for her."
The brothers started the Realm of Caring Foundation, a nonprofit organization that provides cannabis to adults and children suffering from a host of diseases, including epilepsy, cancer, multiple sclerosis and Parkinson's, who cannot afford this treatment.

People have called them the Robin Hoods of mar1juana. Josh Stanley said it's their calling. They use the money they make from medical mar1juana patients and get donations from sponsors who believe in their cause. They only ask patients such as the Figis to donate what they can.
"We give (cannabis) away for next to free," Stanley said. "The state won't allow us to actually give it away, so we give it away for pennies really."
Charlotte gets a dose of the cannabis oil twice a day in her food.
Gedde found three to four milligrams of oil per pound of the girl's body weight stopped the seizures.

Today, Charlotte, 6, is thriving. Her seizures only happen two to three times per month, almost solely in her sleep. Not only is she walking, she can ride her bicycle. She feeds herself and is talking more and more each day.
"I literally see Charlotte's brain making connections that haven't been made in years," Matt said. "My thought now is, why were we the ones that had to go out and find this cure? This natural cure? How come a doctor didn't know about this? How come they didn't make me aware of this?"

The mar1juana strain Charlotte and now 41 other patients use to ease painful symptoms of diseases such as epilepsy and cancer has been named after the little girl who is getting her life back one day at a time.
It's called Charlotte's Web.

"I didn't hear her laugh for six months," Paige said. "I didn't hear her voice at all, just her crying. I can't imagine that I would be watching her making these gains that she's making, doing the things that she's doing (without the medical mar1juana). I don't take it for granted. Every day is a blessing."
Matt added, "I want to scream it from the rooftops. I want other people, other parents, to know that this is a viable option."
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across110thstreet · Jan 6, 2014

tallanvor said: ↑

cannabis is often used just to give a patient an appetite. not necessarily to cure the illness.
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not in the case of seizures like this and other documented incidents.

GanjaRocket · Jan 6, 2014

pouhe said: ↑

I don't see cannabis here:
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this is just.. come on man

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N.J. family gets $10,000 gift to move to Colorado for medical mar1juana

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